"My son was born with the congenital disorder Sturge-Weber, now we try to give him what the genetics denied him"

This is the story of Carolina and her son Alejandro, who was born with just 25 weeks and a rare anomaly that affects the blood vessels of the brain and causes seizures, glaucoma and other health problems. His own mother explains, in first person, what it is and what are the challenges they have had to face, now that he is turning 5 years old.
Carolina Ledezma